The following piece of writing is also written after a discussion with Gem, a visiting practitioner, who suggested I use the line 'I'm tired of...' as a stimulus to develop a monologue.
I’m tired of...
· Not being able to do stuff I want to do as a young man because I have to look after my brother.
· Not having a normal car because it always has to be wheelchair friendly.
· Never being able to go anywhere on holiday with beach, or hill climbing, or mountain biking. They’re hardly wheelchair friendly.
· Having to run to wherever he is every time there is a bang in case he has fallen over and injured himself.
· Having to wipe his arse after he’s taken a shit.
· Having to bath him and wash him.
· Having to clean him every morning and every night.
· Having to brush his teeth.
· Having to help him get dressed.
· Having to chop his food up for him.
· Having to push him around in his wheelchair whenever we go out.
· People staring at him when he goes in his walking frame.
· Having to ask ignorant people in the street to ‘excuse me’ because Paul can’t simply move out of their way.
· Having to translate everything he says because nobody understands him.
· Explaining to people what’s wrong with him.
· Putting all this work in and getting so little back.
· Having a brother who is has the brain age of a 7 year old.
· Not having a brother I can have a pint with.
· Not having a brother I can ask advice from.
· Not being able to kick around a football with my brother.
· Never being an uncle.
· Not having a normal family.
· Feeling guilty for going to university and leaving my brother.
· Feeling guilty that I can walk and talk.
· Feeling guilty that I can get out of bad situations if I want, but that Paul will always be stuck in a disabled body forever.
· Feeling guilty that I want to get married and have my own family when Paul never will.
· People using my brother like a piece of paper.
· Of being offended by words like ‘Spastic’, ‘Spaz’, ‘Crip’, ‘Dowy’, and ‘Retard’.
· Of people who think they know what is best for Paul, despite never meeting him before.
· People thinking they can take advantage of him.
· Of people who are supposed to be his carers repeatedly sexually abusing him and threatening him if he tells anyone what is going on.
· The injustice of seeing a man get away with sexual abuse on an innocent and defenceless young disabled person because ‘there is insufficient evidence’ in the case.
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